Getting ready for treatment #5 was tough. I had to take 5 steroids pills last night around 9:30 and then 5 more pills at 3:30. Those made me feel like I was all crazy and I started worrying about something going wrong with the new treatment. I finally took an Ativan (happy pill) to settle down and got 2 -3 hours of sleep. The steroids really helped the hives improve so they said there was no problem getting treatment. Everything went along fine until we finished the Taxol and they said we could go home. I said they needed to check the file because I was supposed to also have Herceptin with each Taxol....they went back and checked and did not see that noted in my file and since Dr. B. is on vaca this week they told me we would need to skip it. They said it was no big deal but you all know how I like to make a plan and stick to it....I will be calling Dr. B. after New Year's to see how this affects our treatment plan....my worst fear is that I will need to add an extra Taxol treatment on to the end of our schedule....
I was so tired from the lack of sleep and the big bag of benadryl the gave me during treatment I came home and slept most of the afternoon. Right now I feel completely fine. It would be nice if I could feel like this over the weekend but I don't want to get my hopes up.
I have loaded up on all the meds I will need over the next few days. There are some different vitamins I can take to help with neuropathy (numbness in the fingers and toes that is normally only temporary), I have some pain relievers to help with the bone pain with is the number #1 complaint from Taxol. I started putting tea tree oil on my finger nails and toe nails because Taxol is known for causing nails to peel away from the nail bed and also cuase infections in the nails. I have started on an extra C vitamin to help prevent bone loss because chemo is known for that. I have all the old standbys for the wonderful stomach issues that come after a treatment but I will spare you those details! At the end of January I will be going in for another Mugga scan. This will see if I had any heart damage from the AC treatment because the Herceptin can also be very toxic to the heart and if my heart function decreases I may not be able to continue the treatment. That's all for now...I will write again when we get thru the weekend!
3 comments:
Whew! Another one out of the way, just think only 3 to go! Sounds like quite a day for you. Again hoping you can sleep the weekend away and start again Monday. Maybe they could give you a benadryl bag to bring home!I am sure Nurse Bret could take care of it for you.
Well, just remember we are all thinking of you this weekend and praying you feel as good as you did when you wrote this.
Love, Kay
Hi Jan: Each day is a little closer to being done with all of this! I'll volunteer to rub your hands/feet if you need that to keep the numbness away! I know this stuff is crap for you, but you need to know how inspirational you are to your family and friends. You are handling all of this so very well!
Karen
Glad to hear #5 (so far) has not been so bad. Take lots of care and keep us posted!
Happy new year!
Libby
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